As many Gaucher's people know, it is almost impossible to get health insurance due to our pre-existing condition. There are options out there for us. Please visit PCIP.gov for information about how you can be insured.
Informational and Support
- National Gaucher Foundation - http://www.gaucherdisease.org/
- National Gaucher Registry - http://www.gaucherregistry.com
- National Organization for Rare Disorders (NORD) - http://www.rarediseases.org/
- Children’s Gaucher Research Fund - http://www.childrensgaucher.org/
- Children's R.A.R.E. Disease Network - http://www.crdnetwork.org/
- Cerezyme - http://www.cerezyme.com
- VPriv - http://www.vpriv.com/
- Zavesca - http://www.zavesca.com
- Protalix - http://www.protalix.com/
Fellow Gaucher People
- Hannah's Fight - http://littlemisshannah.com/
If you would like to be listed here, please contact Gaucher's Chat.
Advocacy Advice Article Count: 1
We are our own support. This is where you can read about how we won our battles. Someone filed an appeal for a medical cost. Here's what they did and the result.