Advocacy Advice - Gaucher's Chat

We are our own support. This is where you can read about how we won our battles. Someone filed an appeal for a medical cost. Here's what they did and the result.

Hello fellow Gaucher "enthusists"

I have been given a great opportunity to Live Stream through ZubiaLive with a focus on Gaucher and other rare diseases. This once-a-week 15 minute segment called "Rare 15" has already been positively received by the healthcare community. I encourage you to give it a try and chat with me during the live broadcast. Sign up by downloading the ZubiaLive app or by visiting zubialive.net. I'll also continue the conversation on twitter with #rare15chat

See you every Wednesday night this summer at 8:00pm EST. If you have any questions - please email me at This email address is being protected from spambots. You need JavaScript enabled to view it. or contact me through here or FB.

Thanks for your support!

-Leanna Mullen

Gaucher Patient (Type 1).

Due to the high costs of maintaining the site, we are not currently accepting new users. We apologize for the inconvenience. Thank you for your support.

Gaucher and other Rare Diseases Live Stream

Due to the high costs of maintaining the site, we are not currently accepting new users. We apologize for the inconvenience. Thank you for your support.