We are our own support. This is where you can read about how we won our battles. Someone filed an appeal for a medical cost. Here's what they did and the result.

Hello fellow Gaucher "enthusists"

I have been given a great opportunity to Live Stream through ZubiaLive with a focus on Gaucher and other rare diseases. This once-a-week 15 minute segment called "Rare 15" has already been positively received by the healthcare community. I encourage you to give it a try and chat with me during the live broadcast. Sign up by downloading the ZubiaLive app or by visiting zubialive.net. I'll also continue the conversation on twitter with #rare15chat

See you every Wednesday night this summer at 8:00pm EST. If you have any questions - please email me at This email address is being protected from spambots. You need JavaScript enabled to view it. or contact me through here or FB.


Thanks for your support!

-Leanna Mullen

Gaucher Patient (Type 1).

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